I am the mother of a precious, free spirited little girl named Delaney. At one week of age, Delaney was diagnosed with a terminal disease called Cystic Fibrosis. With no history of major illness on either side of the family, my husband and I were devastated. Our beautiful little "Bean" will grow up fighting to breathe due to the effects of Cystic Fibrosis.
Cystic Fibrosis (CF) is an inherited disease that affects the lungs and the digestive system. The CF genes cause the body to produce abnormally thick, sticky mucus that obstructs the airways of the lungs and clogs the digestive track in the stomach and mainly the pancreas. These obstructions can lead to life threatening diseases and many hospitalizations. Currently there is no cure for CF, but there are many drugs, gene therapy and vitamins that are used to help keep a child or young adult healthy. There are 30,000 children and young adults affected with CF and numbers are rising making it the most common fatal genetic disease today. So a cure is important.
Both my husband and I were sworn police officers, serving over 20 years combined in Burlington County. Since stepping away from law enforcement for medical reasons, we have been able to be present with Delaney as she continues to fight the progressive stages of this disease.
Since Delaney's diagnosis, we have been leaning on several outlets for encouragement and support as we try to understand the disease and its affect on our little girl. We encounter daily obstacles and learn to value life everyday.
We have established an organization, Hope 4 Delaney, which arranges and participates in numerous events throughout the year to raise funding and awareness for Cystic Fibrosis.
Hope 4 Delaney is a 501c(3) Federal Tax exempt organization. 100% of the proceeds from our fundraising efforts go directly to The Cystic Fibrosis Center at The Children's Hospital of Philadelphia. The center provides advanced care for patients with Cystic Fibrosis as well as making every effort to ensure all hospital admissions are comfortable for the family. This group of extraordinary doctors and nurses deal directly with several precious lives stricken with this disease. Their dedication to giving families hope is incredible. They make living just a little easier for us who fight this battle to breathe on a daily basis.
The Hope 4 Delaney Chug n' Chew 4 CHOP, is an enjoyable evening for all to eat, drink and take pleasure in the entertainment that has been provided for our cause. We have incredible silent auction items, great giveaways and a 50/50 raffle.
We are anxious for Delaney to experience all of the beautiful things life has to offer her. The closer we are to a cure, the better chance Delaney has of seeing a long healthy life without battling to breathe. Raising money for the CF Center at CHOP is one way you can help us fight for Delaney and help turn so many of the daily struggles. . . . . into smiles!
CHUG n' CHEW 4 CHOP
MAY 11, 2019
The Venue at Lenola
229 N. Lenola Rd
WE DID IT!!! 501c(3) TAX EXEMPT
All the hard work has FINALLY paid off!!! Bernie has put in countless hours on the computer and the telephone to FINALLY get us the gift we have worked so hard for. A 501c(3) tax ID exemption!!! This now steps things up for us as a charity and we hope to bring bigger and better things to the Cystic Fibrosis Center at the Childrens Hospital of Philadelphia.
Donations for Hope 4 Delaney are greatly appreciated. We are a 501 c(3) organization.
Hope 4 Delaney
PO Box 297
Hainesport, NJ 08036