|Posted by hope4delaney on June 21, 2016 at 12:40 AM|
It has been a really rough couple years for us. I have struggled with numerous surgeries and proceudres on my brain and neck. Ever since I was initially diagnosed, things for the CHUG have pretty much, taken a back seat. Fortunately, Bean has remained really healthy through it all!! Her lung function is the best it has ever been and she has continued to fight this battle without any major setbacks.
Our goal is the same at it has been from the start. To raise funding and awareness. We are 100% non-profit. All funds rasied go directly to The Childrens Hopital of Philadelphia Cystic Fibrosis Center. We have made substantial dontations in the past few years and are going to work even harder to see that it continues to happen. This center is why Bean and so many others have the ability to live life to the fullest. Contributing to the CF Center is our way of helping others who need it and provide funding for advanced research to be done in finding a cure.
Please join us in contributing to make our night the best yet! Feel free to email me at [email protected] if you are willing to donate services for the night or a basket for our auction.
More information to follow!!
All the Best!