Hope 4 Delaney

Hope 4 Delaney

           Our Little Fighter  

OUR STORY ... then ... and now

 I am the mother of a precious, free spirited little girl named Delaney.  At one week of age, Delaney was diagnosed with a terminal disease called Cystic Fibrosis.  With no history of major illness on either side of the family, my husband and I were devastated.  Our beautiful little angel will grow up fighting to breathe due to the effects of Cystic Fibrosis. 

Cystic Fibrosis (CF) is an inherited disease that affects the lungs and the digestive system. The CF genes cause the body to produce abnormally thick, sticky mucus that obstructs the airways of the lungs and clogs the digestive track in the stomach and mainly the pancreas. These obstructions can lead to life threatening diseases and many hospitalizations. Currently there is no cure for CF, but there are many drugs, gene therapy and vitamins that are used to help keep a child or young adult healthy. There are 30,000 children and young adults affected with CF and numbers are rising making it the most common fatal genetic disease today. So a cure is important.

My husband has been a sworn police officer for 16 years.  In August of 2010, I unfortunately had to retire from the law enforcement family after a sudden brain illness that left me incapable of working.  I have endured additional surgeries and give every ounce of strength I have to care for my girls.   Since Delaney's diagnosis, we have been leaning on several outlets for encouragement and support as we try to understand the disease and its affect on our little girl.  We encounter daily obstacles and learn to value life everyday.

We have established an organization, Hope 4 Delaney, which arranges and participates in numerous events throughout the year to raise funding and awareness for Cystic Fibrosis. In 2011 we held our 3rd annual beef –n- beer, otherwise known as THE CHUG -n- CHEW 4 CHOP.

As a result of the 2011 event, we were able to raise over $11,000!!! Through the generosity of friends, family and acquaintances this afforded us the opportunity to give a charitable donation to the Cystic Fibrosis Center at the Children’s Hospital of Philadelphia. The center provides advanced care for patients with Cystic Fibrosis as well as making every effort to ensure all hospital admissions are comfortable for the family.  This group of extraordinary doctors and nurses deal directly with several precious lives stricken with this disease.  Their dedication to giving families hope is incredible.  They make living just a little easier for us who fight this battle to breathe on a daily basis.

           

We have recently been granted a federal tax exemption which will allow us to plan for bigger and better fundraising events for our cause! In 2016, we are working to host several events in order to reach our goal of $20,000.  100% of the proceeds will go directly to the CF Center at CHOP.  One of our events, the Hope 4 Delaney Chug n' Chew 4 CHOP, is an enjoyable evening for all to eat, drink and take pleasure in the entertainment that has been provided for our cause.  We have incredible silent auction items, great giveaways and a 50/50 raffle.

2016 CHUG n' CHEW 4 CHOP 

OCTOBER 22, 2016

7pm at The Venue at Lenola 

We are anxious for Delaney to experience all of the beautiful things life has to offer her. The closer we are to a cure, the better chance Delaney has of seeing a long healthy life without battling to breathe.  Raising money for the CF Center at CHOP is one way you can help us fight for Delaney and help turn so many of the daily struggles. . . . . into smiles!

 

                   

2014 STRIKE OUT CF Family Fun Night

 

 

Thank you to everyone who came out and had a great time!  This was a huge success and we look forward to seeing everyone next year.

WE DID IT!!!  501c(3) TAX EXEMPT

All the hard work has FINALLY paid off!!! Bernie has put in countless hours on the computer and the telephone to FINALLY get us the gift we have worked so hard for. A 501c(3) tax ID exemption!!! This now steps things up for us as a charity and we hope to bring bigger and better things to the Cystic Fibrosis Center at the Childrens Hospital of Philadelphia. 

So, we passed our usual date for the 2012 CHUG n CHEW 4 CHOP since claiming this tax id number was so valuble to our organization and the benefits it has for the CF Center. 

We are really anxious to prepare for the new year and the HUGE things the 2013 CHUG will have to offer all of you!! Be ready, its going to be AMAZING!!

 

 

First Light's Annual Pajama Days = SUCCESS!!

A very BIG hug goes out to the staff of FIrst Light PreSchool for hosting the Annual Pajama Days and all of the wonderful families that participated. The donations made will be sent to the Childrens Hospital of Philadelphia Cystic Fibrosis Center in honor of our little Bean, Delaney!!!!

The kids had a great time and I loved listening to them all giggle at each other when they saw their friends in pj's. It was super cute!!

Here are a few pictures to show how much of a success it was!

 

CHUG N CHEW 4 CHOP TEAM! . . . YOU ROCK!!

  2011                                              Chug n' Chew 4 CHOP was a huge sucess for all those who braved a storm for the second year in a row. We raised over $11,000 in one night!!!  A very special thank you to all of our sponsors who made this evening possible, including some new sponsors.   Thanks for giving us HOPE 4 DELANEY!!!  Check out the great pictures in the photo section of the site.
Donations

 

Any donation is greatly appreciated. Donations can be made payable to Hope4Delaney a 501(c)(3)